| Updates |
October 24, 2010
I can't believe it has been just shy of seven years since Jacob was diagnosed with Neuroblastoma, and subsequently OMS. Jacob
has gone through what some could never imagine, and through it all we remained optimistic that some day we would see a light that
would end what seemed to be an endless assault of pain and suffering. We finally found that light in a stem cell transplant last fall,
which would provide that very miracle we had prayed for.
Last Tuesday Jacob was officially taken off the "active treatment" patient list at the cancer center , and is now "off treatment". Jacob
took his last dose of Cortisol on October 1st and his blood work last Tuesday revealed that his adrenal gland is now functioning
normally and on its own, off the ACTH. His next appointment is scheduled for January of 2011 (THREE MONTHS!!). Jacob has
lost 9 kilograms since weaning off the ACTH in April of this year, he is full of energy and is back to having a life every seven year old
should have, his only worry is whether he has school today or not!
Our kitchen is now free of the medication shelving unit which once carried upwards of 15 different medications Jacob required to
fight off infection and keep his little body functioning. Our bedroom is now free of the boxes of medical supplies required to flush
lines, give injections and run IV's.....Jacob wanted to have a big bonfire, but I have tucked everything away in storage to hopefully
collect dust for eternity.
Thank you to everyone who has seen us thorough every part of this journey, we were asked many times "how we did it"....to be
honest I am not sure. I think everyone has it in them, you just have to find that place to run to that helps you make it through to
tomorrow and hold onto and cherish what you have every minute of every day.....
I can't believe it has been just shy of seven years since Jacob was diagnosed with Neuroblastoma, and subsequently OMS. Jacob
has gone through what some could never imagine, and through it all we remained optimistic that some day we would see a light that
would end what seemed to be an endless assault of pain and suffering. We finally found that light in a stem cell transplant last fall,
which would provide that very miracle we had prayed for.
Last Tuesday Jacob was officially taken off the "active treatment" patient list at the cancer center , and is now "off treatment". Jacob
took his last dose of Cortisol on October 1st and his blood work last Tuesday revealed that his adrenal gland is now functioning
normally and on its own, off the ACTH. His next appointment is scheduled for January of 2011 (THREE MONTHS!!). Jacob has
lost 9 kilograms since weaning off the ACTH in April of this year, he is full of energy and is back to having a life every seven year old
should have, his only worry is whether he has school today or not!
Our kitchen is now free of the medication shelving unit which once carried upwards of 15 different medications Jacob required to
fight off infection and keep his little body functioning. Our bedroom is now free of the boxes of medical supplies required to flush
lines, give injections and run IV's.....Jacob wanted to have a big bonfire, but I have tucked everything away in storage to hopefully
collect dust for eternity.
Thank you to everyone who has seen us thorough every part of this journey, we were asked many times "how we did it"....to be
honest I am not sure. I think everyone has it in them, you just have to find that place to run to that helps you make it through to
tomorrow and hold onto and cherish what you have every minute of every day.....
 | |  | |  | |  | |  | |  | |  | |  |
October 2010
| Above: Guilty as charged.....Jacob at camp September 2010 Right: Family together June 2010 |
| Jacob and Josh enjoying some time at camp Summer 2010 |